News June 2013

 Annual BIPNET Education Meeting  June 2013

Venue: Centre for Professional Development, University of Birmingham

Topics for discussion in the morning session will include

  • National Acute Porphyria Service - the first year

  • European Registry for Acute Porphyria

  • Novel Approaches to analysis of haem biosynthetic intermediates

The meeting has been fully sponsored by Orphan Europe (UK).

We are grateful to Sara Elgott for her help in organising this meeting. 

International Congress of Porphyrins and Porphyrias & International Meeting of Porphyria Patients

Abstracts from the meeting held in May 2013 are now available  



News April 2012

National Acute Porphyria Service

The National Specialised Commissioning Team has recently announced the launch of a new National Acute Porphyria Service for the treatment of Acute Porphyrias. 

The new service will be provided by three main centres in Cardiff, Cambridge and London (King’s College Hospital) and is available from April 2012.

For further information on the individual centres, please refer to their respective information pages in the 'Specialist Porphyria Services' section, or alternatively follow the web links from the side menu.


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